Im going out on a limb here and posting a blog based on emotion,which I do not usually do,however if I do not do it now, I will keep quiet about something that needs to be addressed.
IN writing this please realize I am not asking for pity or any such nonsense, only wondering what other people think or what they would do in the same situation.For those that do not know,I am waiting to be listed for a double lung transplant.Because of libel I will not mention the institution and in all reality it would not matter anyway because if an institution as prestigious as this would ask such of me,any of them would.I am down to 2 things that need to be done in order to be listed.One which is very simple,an eye exam,the other put off because of cost is dental.Without dental insurance the cost can be enormous.Over the last few months since my initial evaluation my health had spiraled down which happens a lot with lung diseases and I was hospitalised for 3 days to build me back up to finish my final things to be listed.I was so weak when hospitalised I could barely walk down my hallway.My pulmonary function was at 13%.After 3 days of iv fluids, antibiotics,and steroids I felt like a new woman ready to get it DONE.My pulmonary function after 2 weeks was at 19-20% which is great for me.My heart soared,I was on my way,I even conned the hospital out of my last hepatitus vaccination shot before being discharged!YOU do what you have to do...I WANT to live!The next week I went and had my last vaccine,a tetanus shot.Oh you would not beleive all the things you have to do and Im not going to bore you with them,but there is so much one has to go through to get listed.
So Im down to the dental which I knew would be costly.I had carefully put back all the money I could and was certain we had it.My lung doc says to have the dentist call him first so they can decide the best way to treat me because of my "condition"YUK.I hate being sick,Ive never been sick in my life until this,anyway,my dentist says"I have to refer you to an oral surgeon,I cant do this its too risky"I said "well ono big money?"he said "ah you can finance it" I say"what are we talking? thousands?mucho money?"I was told that there was a form I could submit to a certain foundation Im involved with.The foundation would inturn offer a list of their payments for services and he could agree or not.THIS is the problem.I am left with a social worker asking if I had any fundraising efforts done yet and how much money was in my account.OH yeah we have fundraisers planned,they have just been slow getting organized but thats not my problem.
My problem is this.....I need lungs and I have these people asking me if I have fundraised yet?
I said "I can barely walk down my hallway and your asking me why I have not fundraised?Basically what your saying is ........IF I have lots of greenbacks and I dont ,that I can have a life?She said "well no,every transplant person goes through this"No No thats not the truth"She is saying IF I have X amount of money in my account then I can get a dental clearance and get listed.What else could it be.NOw I ask YOU?
Rich people get the good treament, red carpet,all the way,stays in hospital until they are well enough to leave.People like me..well we are just like cattleshoved thru the system,and god knows what kind of Rx's we are given that we know nothing of.Drugs bought in China and sold to legitimate Drug stores here,happens all the time,watch dateline,do a search ,KNOW what you might be ingesting.Im sick of the health system,too bad I need lungs huh?have you got any spare parts lying around?Owell got that out of my system.NEXT!
