Diangnosed in 1999

Do you ever hear about how bad or well others are doing with MS from others?

i do and sometimes good news, sometimes not so much. . .
i just love it when these people say (more or less) suck it up. it ain't an easy thing to just suck up. sometimes the "big girl panties" are not so soothing.

Laurie2 wrote: Do you ever hear about how bad or well others are doing with MS from others?

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CEAD MILE FAILTE (ONE HUNDRED THOUSAND WELCOMES)

Hi there Laurie2

Oh you bet I hear it! I'm luckier than most I think though- I don't have "family" (so to speak) so I don't have a hard time telling people to bugg off. Well, I never had a hard time telling family to bugg off either, but I'm sure you get the gist.

MS has such a vast range of symptoms, that as we know can shift day to day, sometimes hour to hour- I'd like to strangle those that suggest being closer to God is the cure! Or vitamins, or more fish, or meditation...

I also question the meds out there that supposedly aid in slowing progression. How do they know that? They don't! Are either of you using any of those? My Doc said Copaxone is my only option and so far I've put it off and I don't think I'm any worse for it- although I second guess myself when I have a flare.

This is exhausting...I'll be back soon (or later), nice to meet you Laurie2.

Eversearch

Medication/religion/bee stings

Yes, I've heard the same thing.  There has got to be a cure out there somewhere, is what I hear.  Well, there isn't.  It just isn't so and we can hope that one day there is but it aint here  yet. 

I do take Copaxone.  I think it has lessened my flares.  They seem to come once a year of so and last from 1 - 2 weeks.  I'm doing really good as of today.

Snake Oil and Meditation

I could throttle those who pray on people who have diseases with no cure (yet).  no bees are gonna get closer to me than the honey i put in my tea.

i have been on copaxone for about a year. i was on rebif for a short while but could not tolerate it. they side effects were worse than the MS symptoms. my doc says that they are more and more successful with remylantion, but let's face it, by the time they unlable from experimental therapy, i'll be in a wheel chair if not dead. at least future generations have something to look forward to.  -- sheesh - i'm ramblin. sorry guess that's what happens when you live alone (theoretically); my son (33 y/o) sleeps here, but not much more - he's out or working. but if i need him, he's here God bless him.

well, everclear & laurie, i'm heading off to slumber land now. will see you all later.
Irish.

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CEAD MILE FAILTE (ONE HUNDRED THOUSAND WELCOMES)

Irish- You make me laugh!!!

You are too funny! Look at that last message you wrote, talk about an MS MOMENT! Or are you telepathically reading my mind?

The name is EverSEARCH- not everCLEAR (as in the highest alcohol content booze ever created) and whats so darned funny is that I really don't drink very often (lately) but I had a wild craving as I passed the liquer store today and was sitting here drinking a gin/ginger ale when I saw that! I almost spit it all over my screen! You made my day

On to more serious things... I'm glad your son can be available for you if need be. You mention a future wheelchair- do you think it's close? My physical issues are more balance related than weakness at the moment and a cane seems to suffice for that, if I'm walking any distance. I notice also that open spaces are more of an issue than closer areas, meaning I don't usually feel the need for the cane if I'm inside somewhere- well, come to think of it, I do use walls or whatevers handy and I will use it walking Wal-mart or the mall unless I lean on a cart. But still, the vertigo is definately more prevalent in wide spaces.

Laurie, didn't you say you were told it was ms in 1999? How long before that did you have a clue that something wasen't right? I've heard some people say it was just a few months to diagnosis and others (like me) that odd things dragged on for YEARS before a name was put to it.

Time to go do something else for awhile, even if it's walking around. I can't sit comfortably for long periods of time. I also want to try to figure out how to fancy up my home page here ( or whatever it's called) but that might be too intense for my feeble little brain at the moment.

Hope you ladies have a lovely restful night.

EverSEARCH

[quote="eversearch"]
You are too funny! Look at that last message you wrote, talk about an MS MOMENT! Or are you telepathically reading my mind?

The name is EverSEARCH- not everCLEAR (as in the highest alcohol content booze ever created) and whats so darned funny is that I really don't drink very often (lately) ........You made my day
EverSEARCH
[/quote]

That's right, pick on the crip. . .
Guess i was havin another one of thosemoments. LOL (although i am a bit telepathic) hmmmmm

anyway, i sometimes use the cart when at walmart or target. if im walking i rely on the cart a lot; often use a cane and sometimes at home my walker (when it's necessary) i don't think the wheelchair is in the near future for me, but with MS, ya just never know. 
i
im fortunate that i have only been through a couple of brief bouts of vertigo and have been through the balance thing. my biggest problems now are cognitive function, bladder issues, banding, spasticity and neuropathies but hey - at least i can still walk this beautiful big blue marble and take in the wonders - even if i do it differently than most other, ya know wat i mean?LOL

and lastly (before i go) ms everSEARCH, i wasn't even thinking about the alcohol (sure could use a shot though); i was thinking associated your name with the band EVERCLEAR - they do alternative music. ha ha ha. oh well, gonna run (yeah me run - that's a funny) figuratively not literally and get some things done here. my daughter is coming home tuesday for the summer (well, most of it) and i gotta get her room done.

we did a lot of decorating while she was away this semester and her room is the last i need to put together FOR NOW and i want to WOW her. catch up with you later.
irish heart

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CEAD MILE FAILTE (ONE HUNDRED THOUSAND WELCOMES)

You sound busy!

I just noticed that though the date we write is posted the time is not. Well, thats why we tend to miss each other I'm sure. My posts are generally during other peoples night time. I signed off that last one about 2:00 am. It's early for me tonight, only 11:22pm at this moment.

Hows the decorating going? Are you totally wearing yourself out? Ya know, just a couple minutes more, I'll just sweep...oh I can wash that window too, it'll just take a sec- oops, where's the pillowcase that matches that sheet? OH YEAH- I'M EXHAUSTED!!!

I'm going to start a new thread before this one gets too out of control- we're hijacking Laurie2. Have you heard from her again? I hope she didn't get lost. I know I've forgot to save a place before and never seem to find it again. HEY LAURIE2- WE MISS YOU!!!

Eversearch