I saw my specialist last week, as you know I have not been on this site for some time now. I am sorry to say that I have to close this site. i cannot cope with Facebook and here. If you are on Facebook pls don't hesitate to send me a request if you would like to remain friends. Thank you for being beutiful people and friends to me, your friendship has been truly appreciated as it pains me to not be able to keep this site as well.. Wishing you all the best.. Jayde Dow
http://www.facebook.com/home.php#!/lupus.fibro.HopeAngel
This is a copy of the notes on my specialist visit..
Yesterday I went to a specialist in pain, neurology and transplant surgery, well the basic results are that my medications have been increased to try to keep me out of pain, some would know I have been on morphine pumps before but I don't want this so my dosage has been increased to 200mg/day. This may sound like alot but to me, it isn't. Let me tell you why. I have been fighting this flare of my LUPUS (damaging my immune system and vital organs) for two years ongoing.. My prgans are starting to fail. I donot want sympathy, just understanding that if I can't get back to you it is bcs I am too sick.. I love each and every one of you, you are all like family to me, but I need to take some time-out for me now, I will still be here but without a transplant of major vital organs I honestly do not know for how long, that is in GOD'S hands now, however, those of you who KNOW me know I don't give up easily, sometimes to my own downfall too... and great expanse pain wise for others. My fibro is flaring really badly bcs of my lupus so therefore it is hard for me to type.
Blessings always Jayde
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