Some will ask why I published this blog...well...
I want you, my dear friends,to understand why I (maybe) sometimes can't be online for a while!
I have multiple sclerosis (MS)...
I was diagnosed in 2008 after a complete breakdown of my body
But the doctors were never able to determine exactly when MS first appeared.
It's thought to have started early but because I always had problems with
Herniated discs and the resulting side effects, the doctors are always
assumed that the pain and other physical failures could only come from the back.
When I got the final diagnosis in early 2008, I had a long journey behind me...
I've been to so many doctors and had so many more tests and treatments...I couldn't count them anymore.
But there it was..MS...but now I can say, “I'm not sick. I have a diagnosis.â€
I've to live with it or maybe...multiple sclerosis has to deal with me!!!
I keep having flare-ups and sometimes these flare-ups leave something behind
This is always the reason for further examinations and new medications(Just like today with the MRI scan of my brain)
But overall I'm fine with medication.
It's been more than 14 years since the diagnosis!
14 years in which I was able to gain a lot of experience and learned to live with the disease.
I have found my balance between stress and mindfulness - through work, friendship and further development.
Like many people with MS, I was young, full of life, carefree and happy.
Then the first MS episode came - and burst into my life.
Before and after the diagnosis I spent some time in the hospital because of the many flare-ups.
It was a time of uncertainty and concern - for me, my family, my friends.
To understand the disease and what it does to me is a long way with ups, downs and new insights.
For the first few years, I felt powerless and, in addition to treating my flare-ups,
tried to suppress the disease. That was my way of dealing with it, since every thought of it hurt.
What I know today: If I had dealt more intensively with the diagnosis at the time,
I could have clarified questions earlier and reduced my fears for the future.
It was a silent process. The conscious handling of myself and my surroundings,
in relation to the diagnosis. Appreciating life took on new meaning for me, but it took years.
To this day, there is constant uncertainty as to whether the health situation will change.
I'm always aware of the illness and don't deal with it in a calm and cool manner,
but I'm not anxious either. I know that tomorrow I may be able to walk less than today.
I know that tomorrow my vision may be worse than today.
But I see this awareness more as a drive and not as a limitation.
The flare-ups are unpredictable, I can't control their intensity.
MS is my constant companion, but it doesn't determine my career and certainly not my life!
I no longer work full time, but I work and love my job!
And of course I enjoy my volunteer work at the animal shelter.
My Life Motto:"Where is a Will...There is a way"!...ALWAYS
I know my dear friends this is a long blog and maybe hard to understand
but I felt the need to let you guys know!
I've grown very fond of you and don't want to miss any of you...
As always...with lots of Love & Respect...Vicky
ps.: I wrote this long text with a translator and I hope that the translator did a good job!lol...
